Physiotherapy / digital care / patients as partners
Chair: Maike Dohrn
Speaker: Gita Ramdharry / Helena Pernice / Katherine Forsey
10 min talks, 20 min discussion
Objectives:
• Present and discuss some essential aspects of physiotherapy for patients with neuromuscular conditions and, in particular, CMT, including new developments
• Develop tools of telemedicine to boost effective cooperative treatment, research and development
• Mobilize and change the role of patients: Direct involvement and equitable inclusion of patients as active partners in clinical practice and throughout the entire research and development processes related to diagnostics and therapies
Tasks and deliverables:
• Conceptualizing “patients as partners”
• Strategy and recommendations for the active involvement and participation of patients in iNMD therapy and R&D processes
• Telemedicine in iNMD: Digital care and other aspects of telemedicine to provide for direct communication between patients and specialists - challenges and opportunities