Patients suffering from haemophilia, a rare blood disease, require extensive transitional care – as is the case for any type of chronic care. This chair is aimed at providing young haemophilia patients with correct treatment and with the necessary follow-up as they transition from paediatric care to adult care.
Patients visit the haemophilia treatment centre two to four times a year to see a doctor, nurse and/or psychologist. The systematic follow-up protocol includes consultations, musculoskeletal ultrasounds and scores, and pharmacokinetic studies. In addition, 12 interdisciplinary and 4 multidisciplinary meetings a year, held at specific times, ensure a smooth transition from paediatric to adult haematology.
- Chairholder: Philip Maes
- Faculty: Medicine and Health Sciences
- Active: since 2019